A funny thing happened yesterday. I was getting ready to meet my friend Pat for lunch, and I couldn’t get my shoes on.
I haven’t been anywhere since last Tuesday, so I’ve been padding around the house in soft slippers or stocking-footed. Surprise! My feet — especially my left foot — have swollen to the point that my shoes will not comfortably go on.
This made for not just a frustrating moment, but also a wet moment because (I’ll admit it here) I cried. My feet looked like giant hams. They still do.
And the Scrounge of the Red Rash is still rearing its ugly head. From my knees down I look like I’ve been selectively parboiled. Between the rash and the swelling, my poor feet are very tender to the touch. I cannot put on my compression stockings because it hurts so much.
With the Red Rash so active today, I decided to try out the steroid cream that my Dermatologist prescribed. I think it’s reducing the burning feeling. After having it on for an hour, there seemed to be a positive difference. It’s reassuring that it works because this stuff is EX. PEN. SIVE. I did the math. It comes in a 60 gram tube. I paid $50. My insurance picked up the rest…$397.99. It costs $447.99 a tube!! Sixty grams is 2.112 ounces making this cream $212.12 an ounce! My head is spinning!! Thank goodness the guidelines say to put it on in a thin layer. Per application(twice a day), it’s probably costing $10 per leg.
The Chemo Cafe is busy today — only a couple of empty seats. With me is my pal Shelley. We didn’t do lunch today. Instead we hit a couple of stores for some quick shopping. Chemo Nurse Jenna took note of my swollen, red-rashed legs. She was so impressed that she contacted my Oncologist, who decided that we would forego chemo today and try to get some of the swelling down.
So instead of chemo, I’m getting Furosemide — which is a diuretic also known as Lasix used to treat fluid retention (AKA edema). I’ll take the first pill as soon as I get home so I’ll probably be up peeing most of the night. Actually, if it reduces the size of my ham-feet it will be worth some lost sleep.
I’m also going to get some compression bandages and wrap my legs.
I’ll see the doctor on Thursday to learn how my chemo treatments will be adjusted.
I’m not sorry to have the chemo delayed. Walking has become uncomfortable. It would be good to clear some of this up before adding on more. So I’ll spend tonight and the next couple days on the sofa with my feet higher than my heart trying to help my water-logged legs to empty.
What am I doing for shoes? I have a pair of sandals that I got at the Ohio Renaissance Festival years ago that lace up allowing me to adjust their width. Usually I can wrap the straps twice around my ankles. Not now. Now it’s just a simple knot.
My feet are hams.